6 months out

I promised myself I would do anniversary posts about our cranio journey.  I am about 14 days late, but here is our 6 months post-op update.  Several people have asked why I didn't keep up with just a family blog, my answer is simply if I could type while I sleep then I could make time for it! In all honesty I am not a sentimental, emotional, lay it all out there type of person.  This blog was the only way to get out my raw feelings about how jaded and angry I was that something like this happened to me, and by me, I mean my daughter.  Being vulnerable to others is not my thing, it really just aggravates me more, thus making matters worse.
Since our surgery in February many things have occurred.  We had our several follow ups with plastics and Dr. Honnebier was pleased with the surgery and PA's newly formed head.  All scars and drainage tube marks healed nicely as well.
We had our journey with the pink helmet.  I must say that PA wore it nicely.  We were so blessed that she got it off just in the knick of time for summer, because that thing smelled worse than a junior high boy's locker room.  I am not sure what we would have done if she had it in mid-July! She would have cleared a room in seconds!  We had the expected odd looks and whispers (that we could totally hear), but in all it wasn't near as bad as we had imagined.
Although 6 months is a long time, I sometimes look at the faint zig zag scar through her fair hair and get so overwhelmed at what she went through.  It makes my chest hurt and a pain deep in my stomach happens just thinking about it.  It seems like yesterday Andrew had to basically carry me out of the room we left her in to go to surgery.
I am a member of several cranio support groups on social networks.  Andrew has told me to stop reading them because I make myself a nervous nutcase wreck.  Everyday I read about a child who had their surgery then randomly needed another corrective surgery right before they hit that magic clear mark of 5 years old.  I continue to read because the last thing I want is to be completely blindsided again with an additional surgery.  I pray every night that we are finished.  I pray every day that she does not have to through that again.  I pray every time I read one of those stories for that family that has to endure that awful process once again.  It is simply a waiting game and we are not taking any second for granted.
Presley makes me so happy.  People say that they cannot remember life before their kids.  Well, I can clearly remember life before kids; I slept in, I had money to blow on pointless items, I wore make-up, my floor didn't have juice stains, my living room didn't look like Toys R Us, not to mention I had no clue who the Bubble Guppies were and I was totally okay with that fact.  I can remember life before Presley, I just cannot recall what made me as happy as she does.  She is our everything and we are so lucky that her cranio story thus far is a success.
Six more months until our one year follow up.  Prayers are always appreciated for good news:)